ataxia (ah-tak'se-ah) - is the failure of muscular coordination; irregularity of muscular action. Ataxia due to loss of proprioception (joint position sensation) between the motor cortex and peripheral nerves, resulting in poorly judged movements, incoordination can become more intense and aggravated when the eyes are closed.
NEWSLETTERS
VOLUME 14 NEWSLETTER 1
I am pleased about Esperanza - its fantastic!
My very sceptical Father telephoned me the night before my first Esperanza neuroPeptide appointment and wanted to "manage my expectations'"and said "do not expect to be touched by the hand of God"! Not being a religious man he was politely telling me miracles do not happen! He has eaten his words and is telling everyone how well I am now doing after the Esperanza NeuroPeptide treatment. I will tell you my story, it goes on a bit, but I want to give you the full picture, and not just say "go for it".
THE UPSIDE
I am 39 (40) in October and I have had MS since I was 24, I was doing well but the last 4-5 years its gone wrong, especially the last 2 years when I have started to use a stick to walk or rather shuffle. Stairs were very difficult and often required my boyfriend to lift one leg at a time for me. I also had a chair in the shower as I was unable to stand for very long, let alone with my eyes closed!
On Monday 4 February 2008 I visited the hospital for my neuro-physiotherapy appointment. She was aware that I was about to trial Esperanza. We did a test that involves turning, walking with and without stick, sitting and standing up off chair, standing with eyes closed etc. This is a test that I have done many times over the past 4 years. We wanted a clear medical comparison.
On Monday 11 February my boyfriend Neil and I went to Heathrow and met Gerry Gallagher (who is a wonderful man). Everything is clearly explained and then you do tests, crossing legs, lifting legs, arm strength, hand strength, vibration on hands and feet, balance.
Did the sprays and after 45 minutes we re-did the tests - AMAZING DIFFERENCE for me, even then. Standing with my legs together and eyes closed before was 1.8 seconds before I lost balance, after the Esperanza we stopped the clock after 2 minutes!!
It was very surreal and still is:
On Wednesday 13 February I returned to neuro-physio and did the same test the results were nearly as good as they were 4 years ago! My NHS Neuro-physio is telling all her MS patients about Esperanza as she was completely stunned.
I got home and I could sit down and cross my legs - not done for 4 years without lifting.
I can stand up from sitting, first attempt, not 3, 4 or 5!
I do not use my stick around the house ever. I still use it outdoors, but intend to loose that eventually.
If I see something on the floor I can bend down and pick it up.
Stairs I now walk one at a time - normally.
The chair has gone in the shower
Getting dressed is now much easier - not an event in itself, I can bend down and tie shoelaces without falling over!
I am much happier, I am sleeping better, I am laughing again - you don't notice how much you have changed until you return (I hope that makes sense).
The best thing was dancing at a nightclub on my best friends birthday, OK my feet were not moving but the balance and confidence allowed a good stable wiggle - had my mate and Neil in tears! This weekend I was at another party and friends wanted to test my balance and stability so a I had a plate and then a glass of red wine placed on my head - I just stood there grinning at them, AMAZING.
THE DOWN SIDE
I have over fatigued myself, suddenly I had my life back and I wanted to use it! Even though warned and advised not to overdo it by Gerry Gallagher, I took advantage of the ability to be partying, decorated my bedroom, showing off my newly returned functions and then ... as warned ... I crashed and burnt out. I have slept pretty much for 3 weeks, remembered that I do still have MS, got a bit wobbly on the walking and slow on the stairs. However, normally with a relapse I am hospital and steroids. This time, rest and fresh air, water and Esperanza and I am getting better and I have no doubt that I am continuing to get better daily and soon I will be able to do everything again - and more, just at a more manageable pace - I DO STILL HAVE MS!
I hope you have found this interesting and you have not fallen asleep, this is my experience and it is different for everyone. All I know is that it is right for me!
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